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LAST ACTION SEP 23, 2026  UPDATED SEP 30
S. 5489SENATE BILL · 119TH CONGRESS119THHEALTH

Sickle Cell Care Expansion Act of 2026

Creates physician incentives and grants for sickle cell education, care, and transitions from pediatric to adult services.

WHERE IT STANDS

In the Senate Health, Education, Labor, and Pensions Committee since Sept. 23, 2026, 15 days after it was introduced. Most bills never leave committee.

  1. INTRODUCEDINTROSEP 23, 2026
  2. COMMITTEECOMM.IN COMMITTEE
  3. SENATESENATE—
  4. HOUSEHOUSE—
  5. LAWLAW—
Read the text
WHAT IT DOES

What the bill would do, and why it matters

BASED ON THE TEXT AS INTRODUCED
tl;drWRITTEN OCT 4 FROM THE TEXT AS INTRODUCED

Sickle cell disease care can involve research, ongoing treatment, and a move from pediatric to adult providers. The bill would create physician scholarship and loan-repayment programs, community education grants, and grants to support transitions into adult care. It authorizes funding for all three programs for fiscal years 2027 through 2032.

  • INTRODUCED ONLY This bill has been introduced and possibly referred to a committee, but it has not passed any vote. Most introduced bills never become law — they die in committee without a hearing.
  • DATA NOTE No Congressional Research Service summary was available.
WHAT IT WOULD DO · 4 PROVISIONSINTRODUCED IN SENATE
  1. Recruit physicians for sickle cell care

    The bill would offer medical students scholarships for up to 4 school years, or repay eligible physicians’ education loans, in exchange for service in sickle cell research or care. Scholarship recipients would serve one year for each school year funded; participants would also have to complete a residency consistent with hematology training and a hematology fellowship. The Secretary could prioritize applicants from disadvantaged backgrounds.

  2. Fund community education and advocacy

    The bill would authorize grants to eligible community, faith-based, nonprofit, and federally qualified health center organizations for programs that improve sickle cell health literacy, share information about health and community services, or improve access to care and treatment decisions.

  3. Support transitions to adult care

    The bill would authorize grants for programs helping patients ages 18 to 29 move from pediatric to adult sickle cell care, including help finding adult providers and support with treatment and appointments. Eligible hospitals and higher education institutions could also use grants for specialist fellowships or short-term training programs.

  4. Require transition-program reporting

    Grant recipients would report annually on their activities, patient health outcomes, and, when applicable, specialists trained and fellowships funded. The Secretary would report to specified congressional committees within two years of enactment and annually thereafter.

THE CONTEXT

The bill states that the physician program is intended to advance learning about sickle cell disease and increase the supply of physicians treating it, especially for adults. It also aims to support community education and help patients maintain care when moving from pediatric to adult services.

The bill authorizes federal funding for these activities, but the authorizations do not guarantee that funds will be appropriated. If enacted and funded, the programs would support physician training and service, community outreach, and care-transition services.

Written from the bill text.

KEY DATES
NOT LATER THAN 2 YEARS AFTER ENACTMENT, AND ANNUALLY THEREAFTER
Secretary reports to congressional committees
ANNUALLY DURING THE GRANT PERIOD
Transition-grant recipients submit reports
MONEY
$150,000,000 for each fiscal year
authorized for scholarships and loan repayments for physicians in sickle cell research, treatment, and care, Fiscal years 2027 through 2032
$50,000,000 for each fiscal year
authorized for community-based sickle cell education and advocacy grants, Fiscal years 2027 through 2032
$70,000,000 for each fiscal year
authorized for grants for sickle cell disease transitions from pediatric to adult care, Fiscal years 2027 through 2032
TEXT VERSIONS
  1. ISIntroduced in SenateSEP 23, 20261,920
THE JOURNEY

The path it took, step by step

FROM THE OFFICIAL ACTIONS ON CONGRESS.GOV
  1. IntroducedSEP 23, 2026
    SENATE
    SEP 23, 2026
    By Sen. Hollen with 2 original cosponsors
    Referred to Health, Education, Labor, and Pensions
  2. SAME DAYNOW
    Senate committeeSEP 23, 2026
    HEALTH, EDUCATION, LABOR, & PENSIONS NOW
    SEP 23, 2026
    In committee for 15 days
    No hearing yet
  3. 15 DAYS SO FAR
    Passed the Senate—
    SENATE FLOOR
    —
    Not scheduled
  4. House committee—
    HOUSE
    —
  5. Passed the House—
    HOUSE FLOOR
    —
    Not scheduled
  6. Resolve differencesONLY IF NEEDED
    BOTH CHAMBERS
    ONLY IF NEEDED
    Skipped if the other chamber passes the same text
  7. Signed into law—
    PRESIDENT
    —
    10 days to sign or veto
KEY ACTIONS2 OF 2 · PROCEDURAL STEPS FOLDED
  1. SEP 232026SEP 23, 2026REFERREDRead twice and referred to the Committee on Health, Education, Labor, and Pensions.
  2. SEP 232026SEP 23, 2026INTRODUCEDSENATEIntroduced in Senate
HOW LONG LAWS TAKE119 LAWS THIS CONGRESS

At day 15, this bill is already older than 4% of the laws passed this Congress were when they were signed.

DAYS FROM INTRODUCTION TO SIGNING · ○ CEREMONIAL
YOUR MEMBERS

Where your members stand on it

WHO’S BEHIND IT · 2 COSPONSORS

A coalition from 2 states

PARTY MIX
0 REPUBLICANS2 DEMOCRATS

Plus the sponsor, a Democrat. Every cosponsor is from one party.

COSPONSORS BY STATEEACH BAR IS ONE OF THE STATE’S TWO SENATORS
AK
ME
VT
NH
WA
ID
MT
ND
MN
IL
WI
MI
NY
RI
MA
OR
NV
WY
SD
IA
IN
OH
PA
NJ
CT
CA
UT
CO
NE
MO
KY
WV
VA
MD
DE
AZ
NM
KS
AR
TN
NC
SC
OK
LA
MS
AL
GA
HI
TX
FL
DEMOCRATDEMREPUBLICANREPINDEPENDENTINDSPONSORNOT A COSPONSORNONE
PARTY MIX
0 REPUBLICANS2 DEMOCRATS

Plus the sponsor, a Democrat. Every cosponsor is from one party.

MOMENTUM
SEP 2026 · 2 ORIGINALNOW · 2

Sen. Van Hollen’s record: sponsored 76 bills this Congress. 1 passed the Senate; 0 became law.

EVERY COSPONSOR · IN THE ORDER THEY JOINED2 ACTIVE
READERS · 0 COMMENTS

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