Bills · S 1838
PASSED SENATE· 119TH CONGRESS
Senate BillS 1838Medical researchResearch administration and funding
DeOndra Dixon INCLUDE Project Act of 2026
INTRO MAY 21· LAST ACTION AUG 10
READING
3MIN
COSPONSORS
9BIPARTISAN
READER REACTIONS0 TOTAL
NO VOTES YET · BE THE FIRST
- Introduced only
LEGISLATIVE PROGRESS
STEP 4 / 8Introduced
In Committee
Reported
Passed Senate
Passed House
Conference
To President
Became Law
WHAT THE BILL DOES
AI-writtenThis bill matters because it establishes a focused and coordinated national effort to research Down syndrome, which could lead to significant advancements in understanding and treating the condition. Currently, research may be fragmented, but this bill aims to centralize and expand it, especially considering the dramatic increase in life expectancy for individuals with Down syndrome in recent decades.
If this bill becomes law, it could lead to new therapies, better early detection methods, and improved medical interventions for co-occurring conditions like Alzheimer's disease, ultimately enhancing the health and independence of people with Down syndrome. Without this law, a dedicated, coordinated, and broadly funded national research program specifically for Down syndrome might not exist, potentially slowing progress in a field that has seen substantial improvements in quality of life and longevity.
KEY PROVISIONS
4AI-extractedPROVISION 01
Establishes the 'INCLUDE Project' within the National Institutes of Health to conduct research, training, and investigation related to Down syndrome.
This creates a dedicated, organized federal initiative solely focused on advancing scientific understanding and treatment for Down syndrome.
PROVISION 02
Directs the program to include research on basic science, assembling study populations, expanding clinical trials, biological mechanisms, biomarkers, co-occurring conditions, and improving quality of life.
These specific mandates ensure a comprehensive and multi-faceted approach to addressing the various aspects of Down syndrome and its related health challenges.
PROVISION 03
Requires coordination among NIH institutes and prioritization of non-duplicative research efforts concerning Down syndrome.
This aims to maximize the efficiency of research funding and efforts, ensuring that resources are used effectively to explore new areas rather than repeating existing work.
PROVISION 04
Mandates the Secretary of HHS to submit biennial (every two years) reports to Congress detailing the research conducted or supported by the 'INCLUDE Project'.
These reports provide transparency and accountability, allowing Congress and the public to track the progress and outcomes of the federally funded research.
SPONSORSHIP
1 + 9
D· Colorado
YRS IN OFFICE
5
BILLS LED
36
COSPONSOR BREAKDOWNBIPARTISAN · 66%
DEM 6 REP 3 IND 0
ACTION TIMELINE
11 EVENTSAUG 10
Message on Senate action sent to the House.
AUG 10
Received in the House.
AUG 10
Held at the desk.
AUG 6
Senate Committee on Health, Education, Labor, and Pensions discharged by Unanimous Consent.
BILL INFO
TypeSenate Bill
NumberS 1838
Congress119th
StatusPassed Senate
IntroducedMay 21, 2025
Last actionAug 10, 2026
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PASSED SENATE· 119TH CONGRESS · HEALTH, EDUCATION, LABOR, AND PENSIONS COMMITTEE · INTRODUCED MAY 21, 2025
Senate BillS 1838Medical researchResearch administration and funding
DeOndra Dixon INCLUDE Project Act of 2026
INTRODUCED MAY 21, 2025· LAST ACTION AUG 10, 2026
PASSAGE CHANCES
—%
READING
3 min
COSPONSORS
9
COMPLEXITY
Moderate
