Bills · HRES 209
IN COMMITTEE· 119TH CONGRESS
House Res.HRES 209Health
Expressing support for the designation of April 5, 2025, as "Barth Syndrome Awareness Day".
INTRO MAR 10· LAST ACTION MAR 10
READING
3MIN
COSPONSORS
14BIPARTISAN
READER REACTIONS0 TOTAL
NO VOTES YET · BE THE FIRST
- Non-binding
LEGISLATIVE PROGRESS
STEP 2 / 8Introduced
In Committee
Reported
Passed House
Passed Senate
Conference
To President
Became Law
WHAT THE BILL DOES
AI-writtenThis resolution matters because it provides official recognition from a branch of the U.S. government for Barth syndrome, a rare and often fatal genetic disorder. While it doesn't create new laws or provide direct funding, this formal expression of support can significantly increase the visibility of the condition.
Increased visibility can encourage public discourse, potentially lead to more donations for research foundations, and subtly influence policymakers to prioritize funding for rare disease research in the future. If this resolution passes, it signals that members of Congress acknowledge the difficulties faced by individuals with Barth syndrome and their families, potentially fostering an environment where more resources and attention are directed toward finding cures and improving their quality of life. If it doesn't pass, the specific congressional endorsement would not occur, but private efforts for awareness and research would continue independently.
KEY PROVISIONS
4AI-extractedPROVISION 01
Expresses support for designating April 5, 2025, as "Barth Syndrome Awareness Day."
This provision provides official congressional recognition for the rare genetic disorder, aiming to increase public understanding.
PROVISION 02
Recognizes the importance of improving awareness and encouraging accurate, early diagnosis of Barth syndrome.
Calls attention to the need for better detection and understanding of the condition among the general public and medical community.
PROVISION 03
Emphasizes the need to advance research and develop new treatments, diagnostics, and cures for Barth syndrome.
Highlights the critical demand for scientific progress to combat this life-threatening genetic disorder.
PROVISION 04
Identifies the importance of finding clear regulatory pathways for drug development for ultrarare diseases like Barth syndrome.
Acknowledges the unique challenges in bringing treatments to market for very rare conditions and seeks to streamline the process.
SPONSORSHIP
1 + 14
D· New York
YRS IN OFFICE
17
BILLS LED
29
COSPONSOR BREAKDOWNBIPARTISAN · 100%
DEM 7 REP 7 IND 0
ACTION TIMELINE
2 EVENTSMAR 10
Submitted in House
MAR 10
Referred to the House Committee on Energy and Commerce.
BILL INFO
TypeHouse Resolution
NumberHRES 209
Congress119th
StatusIn Committee
IntroducedMar 10, 2025
Last actionMar 10, 2025
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IN COMMITTEE· 119TH CONGRESS · ENERGY AND COMMERCE COMMITTEE · INTRODUCED MAR 10, 2025
House Res.HRES 209Health
Expressing support for the designation of April 5, 2025, as "Barth Syndrome Awareness Day".
INTRODUCED MAR 10, 2025· LAST ACTION MAR 10, 2025
PASSAGE CHANCES
—%
READING
3 min
COSPONSORS
14
COMPLEXITY
Moderate
