Ian Kalvinskas Pediatric Liver Cancer Early Detection and Screening Act | ChamberLight
Bills · HR 5355
IN COMMITTEE· 119TH CONGRESS
House BillHR 5355Health
Ian Kalvinskas Pediatric Liver Cancer Early Detection and Screening Act
INTRO SEP 15· LAST ACTION SEP 18
READING
4MIN
COSPONSORS
13BIPARTISAN
READER REACTIONS0 TOTAL
NO VOTES YET · BE THE FIRST
Introduced only
LEGISLATIVE PROGRESS
STEP 2 / 8
Introduced
In Committee
Reported
Passed House
Passed Senate
Conference
To President
Became Law
WHAT THE BILL DOES
AI-written
Pediatric liver diseases and cancers are serious and often life-threatening, but early detection can significantly improve a child's chances of survival and successful treatment. This bill addresses a critical need by investigating current gaps in screening and treatment, potentially leading to more children receiving timely diagnoses and life-saving interventions, such as liver transplants.
Furthermore, the bill aims to tackle the shortage of donor organs for children by educating the public about living liver donation. If this bill becomes law, it could lead to better health outcomes for thousands of children by promoting early detection and increasing the availability of donor organs. If it doesn't pass, progress in these vital areas of pediatric healthcare might continue at a slower pace, potentially costing lives.
KEY PROVISIONS
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PROVISION 01
The Government Accountability Office (GAO) must conduct a study on federally funded initiatives for pediatric liver tumors, trends in transplant wait-list mortality, and the cost-effectiveness of adding direct-bilirubin screening to newborn panels.
This study will provide crucial data and insights to inform future policies regarding pediatric liver disease detection and treatment.
PROVISION 02
The Secretary of Health and Human Services (HHS) must establish a public education program to disseminate plain-language materials on early signs of pediatric liver disease and the option and safety of living liver donation.
This program aims to increase public awareness and improve early detection, potentially saving lives and increasing donor availability.
PROVISION 03
The Comptroller General of the United States must submit a report to Congress on the results of the GAO study within one year of the bill's enactment.
This ensures accountability and provides Congress with timely information to consider legislative or administrative actions.
PROVISION 04
The Comptroller General must also report to Congress on the results of the public education program within three years of its initiation.
This will assess the effectiveness of the education program and identify areas for improvement.
Pediatric liver diseases and cancers are serious and often life-threatening, but early detection can significantly improve a child's chances of survival and successful treatment. This bill addresses a critical need by investigating current gaps in screening and treatment, potentially leading to more children receiving timely diagnoses and life-saving interventions, such as liver transplants.
Furthermore, the bill aims to tackle the shortage of donor organs for children by educating the public about living liver donation. If this bill becomes law, it could lead to better health outcomes for thousands of children by promoting early detection and increasing the availability of donor organs. If it doesn't pass, progress in these vital areas of pediatric healthcare might continue at a slower pace, potentially costing lives.
KEY PROVISIONS
AI-extracted
high
The Government Accountability Office (GAO) must conduct a study on federally funded initiatives for pediatric liver tumors, trends in transplant wait-list mortality, and the cost-effectiveness of adding direct-bilirubin screening to newborn panels.
This study will provide crucial data and insights to inform future policies regarding pediatric liver disease detection and treatment.
med
The Secretary of Health and Human Services (HHS) must establish a public education program to disseminate plain-language materials on early signs of pediatric liver disease and the option and safety of living liver donation.
This program aims to increase public awareness and improve early detection, potentially saving lives and increasing donor availability.
high
The Comptroller General of the United States must submit a report to Congress on the results of the GAO study within one year of the bill's enactment.
This ensures accountability and provides Congress with timely information to consider legislative or administrative actions.
med
The Comptroller General must also report to Congress on the results of the public education program within three years of its initiation.
This will assess the effectiveness of the education program and identify areas for improvement.
Not later than one year after the date of enactment
Comptroller General to transmit a report on the GAO study to Congress
Not later than 3 years after the date on which the Secretary initiates the program
Comptroller General to transmit a report on the public education program to Congress
GLOSSARY
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Comptroller General of the United States
The head of the Government Accountability Office (GAO), which is an independent agency that audits federal programs and expenditures.
Hepatoblastoma
A rare cancerous tumor that originates in the liver and is the most common malignant liver tumor in early childhood.
Biliary Atresia
A rare disease of the liver and bile ducts that occurs in infants, where the bile ducts are blocked, leading to liver damage.
Kasai portoenterostomy
A surgical procedure used to treat biliary atresia in infants, where a segment of the small intestine is connected directly to the liver to allow bile to drain.
Direct-bilirubin measurement
A blood test that measures a specific type of bilirubin (a waste product from red blood cells) that indicates how well the liver is functioning. Elevated levels in newborns can signal liver problems.
Cholestatic liver disease
A condition where the flow of bile from the liver is reduced or blocked, leading to a buildup of bile in the liver and bloodstream.
Health Resources and Services Administration (HRSA)
ACTION TIMELINE
3 EVENTS
SEP 18, 25
Sponsor introductory remarks on measure. (CR H4418)
INTROREFERRAL
SEP 15, 25
Introduced in House
INTROREFERRAL
SEP 15, 25
Referred to the House Committee on Energy and Commerce.
An agency within the U.S. Department of Health and Human Services that improves health care to people who are geographically isolated, economically or medically vulnerable.
Centers for Disease Control and Prevention (CDC)
The leading national public health agency of the United States, responsible for protecting public health and safety through the control and prevention of disease, injury, and disability.
