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Claims data

Information submitted by healthcare providers to insurance companies (like Medicare or Medicaid) to get paid for services. It typically includes details about the patient, the services received, diagnoses, and costs.

Secretary of Health and Human Services (HHS)

The head of the U.S. Department of Health and Human Services, a cabinet-level position responsible for protecting the health of all Americans and providing essential human services.

Clinical data registry

An organized system that collects specific information about patients who share a disease or condition, or who have received a particular type of treatment or service. These registries are often used for research, quality improvement, and public health purposes.

Medicare program

A federal health insurance program for people 65 or older, certain younger people with disabilities, and people with End-Stage Renal Disease (permanent kidney failure requiring dialysis or a transplant).

Medicaid program

A joint federal and state program that helps cover medical costs for some people with limited income and resources.

Deidentified data

Health information from which specific identifying details, such as names, addresses, and social security numbers, have been removed to protect individual privacy.