Sickle Cell Disease Treatment Centers Act of 2026
Creates grants for sickle cell treatment networks that connect medical providers with community organizations and support national coordination and data collection.
In the House Energy and Commerce Committee since Sept. 24, 2026, 14 days after it was introduced. Most bills never leave committee.
- INTRODUCEDINTROSEP 24, 2026
- COMMITTEECOMM.IN COMMITTEE
- HOUSEHOUSE—
- SENATESENATE—
- LAWLAW—
What the bill would do, and why it matters
Sickle cell disease care can involve ongoing treatment and support from multiple providers. The bill would create federal grants for networks linking medical hubs, local providers, and community organizations to serve patients. It would also establish a national coordinating center and expand federal data collection on care and health outcomes.
- INTRODUCED ONLY This bill has been introduced and possibly referred to a committee, but it has not passed any vote. Most introduced bills never become law — they die in committee without a hearing.
- DATA NOTE No Congressional Research Service summary was available.
- Create grants for treatment-center networks
The bill would direct the Secretary of Health and Human Services to award grants for sickle cell disease treatment centers organized as hub-and-spoke networks. Each eligible applicant would need a medical hub, at least one spoke, and a community-based nonprofit organization working in partnership.
- Support coordinated care and community services
Grant funds could support integrated medical and social services, provider education, telehealth, and programs to help patients move from pediatric to adult care. Funds could also help patients access insurance, transportation, testing, and genetic counseling.
- Coordinate centers and collect national data
The bill would establish a National Sickle Cell Disease Coordinating Center to support grantees, develop a national care strategy, and provide technical assistance. It would also direct CDC to collect and share data on the disease, health outcomes, complications, and disparities.
- Authorize funding and set its allocation
The bill would authorize such sums as may be necessary for fiscal year 2027 and each fiscal year thereafter. Of the amount appropriated, 70 percent may support hub-and-spoke networks, 20 percent community-based organizations, 5 percent the coordinating center, and 5 percent CDC data-collection activities.
The bill is designed to connect medical care with community support, education, and services such as transportation and telehealth. It also aims to improve the move from pediatric to adult care and to build a broader picture of patients’ health outcomes and needs.
Written from the bill text.
The path it took, step by step
- IntroducedSEP 24, 2026HOUSESEP 24, 2026By Rep. Adams with 2 original cosponsorsReferred to Energy and Commerce
- SAME DAYNOWHouse committeeSEP 24, 2026ENERGY & COMMERCE NOWSEP 24, 2026In committee for 14 daysNo hearing yet
- 14 DAYS SO FARPassed the House—HOUSE FLOOR—Not scheduled
- Senate committee—SENATE—
- Passed the Senate—SENATE FLOOR—Not scheduled
- Resolve differencesONLY IF NEEDEDBOTH CHAMBERSONLY IF NEEDEDSkipped if the other chamber passes the same text
- Signed into law—PRESIDENT—10 days to sign or veto
- SEP 242026SEP 24, 2026REFERREDHOUSEReferred to the House Committee on Energy and Commerce.
- SEP 242026SEP 24, 2026INTRODUCEDHOUSEIntroduced in House
At day 14, this bill is already older than 3% of the laws passed this Congress were when they were signed.
Where your members stand on it
A coalition from 2 states
Plus the sponsor, a Democrat. Every cosponsor is from one party.
Plus the sponsor, a Democrat. Every cosponsor is from one party.
Rep. Adams’s record: sponsored 31 bills this Congress. 0 passed the House; 0 became law.
- Danny K. DavisD-IL-7ORIGINAL
- Glenn IveyD-MD-4ORIGINAL
What readers think
Discussion
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